Duke Hospital

Today we went to Duke Hospital for a few appointments for Erin's NF. We saw a Neurologist and a Geneticist. The Children's hospital is so bright and cheerful, the lobby anyway. When we walked in there was a huge aquarium of fish. Penny loved that. The actual clinical rooms, were regular 'ole dr.'s office rooms....boring. We were referred to this group @ Duke by our pediatrician. This is a specific group for NF. The other specialists that we saw @ Baptist were excellent, but really didn't work as a cohesive group. Duke coordinates appointments, so that we can see 4 dr.'s in one day,if necessary, or see a few dr.'s before our annual MRI. Really nice for us who don't live down the street from Durham. I really appreciate that. We would end up going to Baptist hospital @ least 4 times a year, and then once to HP for her Neurology appointment. We saw the Geneticist first and when I realized that we were going to be late for our Neurology appointment, the med student arranged for us to have a later time. Really the appt.'s today were merely a meet and greet session. They wanted to make sure that Erin did indeed have NF, and not something else masked as NF. I can understand their concern, but when they have MRI results for the past few years in their widdle hands, it should be known that she has NF. Plus, since we are well versed in NF, we didn't need to hear some of the normal speeches that they give to new patients and their families. Overall, we had an enjoyable time. The hospital was even passing out cake in the lobby to patients and their parents, as we left. Erin and Penny were in heaven. I just wished that we had more time to find Duke and cruise the campus. We are Duke fans, so it would've been cool to see. Oh- that reminds me, outside the front door the the Children's Hospital there is a Coach K mini court, for the kiddies to shoot some hoops. Way cool!!
If you want to learn more about NF, google The Children's Tumor Foundation, and click of NF or Neurofibromatosis.

Waiting in the waiting room.

...in the room.